A Rare Diagnosis
When Broc Brown was only 5 years old, he received his diagnosis. This diagnosis is so rare it only affects one in every 15,000 people. It turns out Broc Brown had a hereditary condition called Sotos Syndrome or “cerebral gigantism.” While his family was glad to finally know what was causing this abnormal growth, it was unclear how his future would turn out and if he would ever stop growing.
A Gloomy Prognosis
It was hard enough on Broc and his family to get the diagnosis, but there was more information that would cause them worry and panic. The doctor’s stated it was unlikely Broc would survive his teenage years as there is no treatment or cure for Sotos syndrome.