Genetic Mutation
Medical professionals found both women have mutations in the FBN1 gene which is responsible for their condition. The condition is specifically called Marfanoid–progeroid–lipodystrophy syndrome or Marfan lipodystrophy syndrome.
Genetic Mutation
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Lizzie Was Bullied Daily Due To Her Disease
Lizzie grew up being called names like “skinny bones,” “pork chop legs” and “grandma.” She often faced questions such as “what is wrong with your face?” and “why do you look like that?” Can you even imagine going through life this way?
She Was Bullied Daily
